Autism Spectrum Disorder (ASD): Myths and Facts
Myth: Children and adults with autism
spectrum disorders do not care about others.
Fact: Children and
adults with an ASD often care deeply but lack the ability to spontaneously
develop empathic and socially connected typical behavior.
Myth: Children and adults with autism
spectrum disorders prefer to self-isolate.
Fact: Children and
adults with an ASD often want to socially interact but lack the ability to
spontaneously develop effective social interaction skills.
Myth: Children and adults with an ASD
cannot learn social skills.
Fact: Children and
adults with autism spectrum disorders can learn social skills if they receive
individualized, specialized instruction and training. Social skills may not
develop simply as the result of daily life experiences.
Myth: Autism spectrum disorders are caused
by poor parenting or parental behavior.
Fact: Parents do not
and cannot cause autism spectrum disorders. Although the multiple causes of all
autism spectrum disorders are not known, it IS known that parental behavior
before, during and after pregnancy does not cause autism spectrum disorders to
develop.
Myth: Autism spectrum disorders are not
increasing in incidence. They are just being better diagnosed, and diagnosed
earlier so the numbers are increasing.
Fact: Autism spectrum
disorders are increasing across the globe at an alarming rate. Some states are
considered to be in an autism epidemic. Many states experienced a 500-1000%
increase in the past few years. No one knows the cause or causes for the
increase. Better and earlier diagnosis can only account for a fraction of the
current increases in numbers.
Myth: ASD is a behavioral/emotional/mental
health disorder.
Fact: Autism related
disorders are developmental disabilities and neuro-biological disorders. These
disorders manifest in early childhood (usually before the age of three or four)
and are likely to last the lifetime of the person.
Myth: People with autism spectrum
disorders cannot have successful lives as contributing members of society.
Fact: Many people
with autism spectrum disorders are being successful living and working and are
contributing to the well being of others in their communities. This is most
likely to happen when appropriate services are delivered during the child's
free, appropriate, public education years.
Myth: Autism spectrum disorders get worse
as children get older.
Fact: Autism spectrum
disorders are not degenerative. Children and adults with autism should
continuously improve. They are most likely to improve with specialized,
individualized services and opportunities for supported inclusion. If they are
not improving, make changes in service delivery.
Myth: Autism spectrum disorders do not run
in families.
Fact: More families
are experiencing multiple members with an ASD than ever before. In some
families, parents with an ASD were misdiagnosed or never diagnosed. In some
families, many or all siblings are in the autism spectrum. Most often, one
child with autism is born into families who do not have other family members
with an autism spectrum disorder.
Myth: All people with an autism spectrum
disorder have "savant skills", like Dustin Hoffman's character in
"Rain Man".
Fact: Most people
with autism spectrum disorders do not have any special savant skills. Some have
"splinter skills", areas of high performance that are not consistent
with other skill levels.
Myth: It is better to "wait and
see" if a child does better rather than refer the child for a diagnostic
assessment.
Fact: The earlier
autism spectrum disorders are diagnosed and treated, the better. Outcomes for
children's lives are significantly improved with early diagnosis and treatment.
When in doubt, refer, do not wait.
Myth: Autism spectrum disorders are
something to be hidden. Other students should not know about the presence of an
ASD in a classmate. If you do not tell the other children, they will not know
that something is "wrong" with the student with an ASD.
Fact: Students need
to know when their classmates have a developmental disability that is likely to
effect interactions and learning. Students as young as five years old are able
to identify differences in their peers. When students are not given appropriate
information, they are likely to draw the wrong conclusions, based on their very
limited experiences. Confidentiality rules must be taken into consideration and
parental approval sought to teach peers how to understand and interact
successfully with children with ASD.
Myth: Certain intensive, behavioral based
programs "cure" autism spectrum disorders if they are delivered at
the right age and intensity.
Fact: There is no
cure for autism spectrum disorders. Early behavior-based interventions have
positive effects on some children with autism and less note-worthy effects on
other children. Early services need to be based on individual children's needs
and learning styles, not based on programs being sold as "cures" for
every child with ASD. Services for adults with the features of autism need to
be carefully individualized to the adult.
Myth: Children and adults with autism
spectrum disorders are very similar to one another.
Fact: Although all
children and adults with autism spectrum disorders have three diagnostic
features in common, each child with an ASD is a unique individual. People with
autism spectrum disorders differ as much from one another as do all people.
Myth: Children and adults with autism
spectrum disorders do not interact very much. They do not have good eye
contact. They do not speak well. They are not very bright.
Fact: Children and
adults with autism spectrum disorders may speak and/or interact with others.
They may have good eye contact. They may be verbal or non-verbal. They may be
very bright, of average intelligence or have cognitive deficits.
Myth: The best place to educate a child or
adult with an autism spectrum disorder is in a separate program designed for
children or adults with autism.
Fact: Educational and
adult services delivered to a people with ASD must be specifically designed for
each person. Many people with ASD do the best when their services are
individualized to them, not designed to be the same for a whole group. Remember
that the "I" in IEP or IHP stands for "individualized."
(The outcome for education for all children is to be able to belong to the
community and contribute. These goals are often best met when the child with an
ASD is educated in a community school with access to the typical children who
will become the community of the future.)
Myth: If you have an autism disorder, you
will not have any other disorder.
Fact: Autism Spectrum
Disorders can co-occur with any other disorders. It is common to find a person
with ASD who also has any of the following: Down Syndrome, cerebral palsy,
cognitive impairments, deafness, blindness, and medical or seizure disorders.
Myth: it is very hard to know if a person
with other disabilities has an autism spectrum disorder.
Fact: Autism is diagnosed by looking at the behavior of
the individual. If the individual displays the features of autism, then they
may have autism. An assessment should be completed.
The features of autism (summarized) are: Qualitative differences in reciprocal social interaction (inability to easily
create and sustain relationships) Qualitative differences in BOTH verbal and non-verbal communication (not using
and responding to communication signals in a typical way) Restricted, repetitive and stereotypic patterns of interests, behavior and
activities, Onset of these features early in life usually by age 4.